Welcome to Rapsodi


What is Rapsodi?

Research has shown us that we may be able to intervene many years before people develop Parkinson's and slow down its progression. Carriers of genetic abnormalities in the GBA gene (which can also cause Gaucher disease) are at increased risk of Parkinson's disease although the vast majority will not develop it. 

Rapsodi assesses carriers of GBA genetic abnormalities on a yearly basis for symptoms associated with the earliest stages of Parkinson's disease. Assessments are carried out online and by post. In the future we hope to enrol GBA carriers in drug trials of new medicines designed prevent the development of Parkinson's disease

 

IF YOU HAVE BEEN DIAGNOSED WITH PARKINSON'S DISEASE AND DO NOT KNOW WHETHER YOU HAVE A GENETIC ABNORMALITY IN THE GBA GENE, PLEASE VISIT OUR SISTER STUDY PDFRONTLINE.COM  

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Learn more about the link between Gaucher, GBA and Parkinson's.

 

Take part in the study

If you have Gaucher disease, are related to someone with Gaucher disease or know you carry an abnormal copy of the GBA gene, please sign up for the study

 


What the study involves

  1. Register and log on
  2. It will take 45 minutes to an hour
  3. Fill in some questionnaires
  4. Do a keyboard tapping test
  5. Do some memory tasks
  6. We'll then send you a smell test and saliva kit in the post

Learn more